Lily has gained one pound since birth. Today she is 2 lbs. 9 oz. Daniel and I had a meeting with Lily's doctor and couple of her nurses yesterday. We talked all about how Lily has been doing and what to expect in the coming weeks. Lily is really doing amazingly well. She had her 4th (I think) brain ultrasound on Wednesday this week. It came out well. The blood clot in her brain continues to shrink (just what they want to see). Her breathing is good. Doc said they will be thinking about stopping her doses of caffeine this coming week and possible switching her from high flow to a nasal cannula (if she does well). Next week Lily will have another eye test and at some point in the future, a hearing test as well. They continue to try and adjust her feeding to help her gain weight - the doctor said they'd check how much protein she was getting - to be sure she's getting enough - and possibly add some protein powder to her feedings if she needs it.
One of the biggest answers to prayer this week has been Lily's hematocrit levels (in her blood). On Wednesday, they were a bit worried as her level was low (25). The first time Lily's blood crit was low, they gave her a blood transfusion. The second time, they gave her some medicine. We certainly were a bit worried, hoping she wouldn't need another transfusion. But Praise God - on Thursday, she was back up to 31! It was really good news.
Aunt Lydia has been here helping out this week. We have been very thankful for her. Daniel and Lydia went to the hospital last night and Lydia held Lily. Here are a few pictures...
Lily's nurses say she's an active little one always moving and scootching about - she was all askew when Daniel and Lydia when to visit.
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