Monday

Lily is doing well today. The doctor heard another heart murmur over the weekend and scheduled another schocardiogram for Lily yesterday. Thankfully - it resulted in good news. The little value next to her heart was still closed. Whew! She has another little valve (or something like it) that is open. Dr. Quissell says it's nothing to worry about. It's pretty common in babies and usually closes on its own during a babies first year of life. Praise God! So her heart is doing well. She's had fewer bradies over the weekend. They checked her bilirubin levels (for jaundice) early this morning and it was very low (1 or 1.5), so they were able to turn off the light. Yeah! Her breathing is still good and they are upping her feedings. Today she gets 3 ml every 4 hours and they will up her to 4 ml tonight. So -- all really really good things. We are still a bit worried about the bleeding in her brain. But we won't know anything more until Wednesday when they do an ultrasound. So far, there have been no signs that her brain is swelling or is under any pressure, so that's good. We keep hoping and praying for a good result on Wednesday.

Despite all the good news today, it was a tough weekend. Funny how even the littlest things like hearing she needs another echocardiogram can just sky rocket my fears and emotions. It's difficult to live through (though easy to look back on, especially when the news turns out to be good). Thanks to all of you whom I've been able to talk on the phone with. I really appreciate all your encouragement - it definitely helps get me through.